27 August 2011

Owning my Diseases



I OWN MY CROHN'S IT DOESN'T OWN ME! 

After dealing with not being 100% well I decide a couple of years ago to OWN my diseases. Crohn's has taken over my life in the past and since I decided to take control of my Crohn's I have felt better. I no longer feel down about having it. I now rejoice each day that I have that is pain free and take the painful days in stride.  This disease and the secondary conditions that it has bestowed on me being Ankylosing Sponylitis and Uveitis will no long have a strong hold on my life. Never mind the other conditions that I must contend with being Asthma, a Hiatus Hernia, Osteoporosis and Cataract's (due to the long term use of prednisone).

Yes, I did have days that I would I sit and cry and say '"WHY ME". I never really got an answer until I realized that I have these medical conditions because I have the ability to handle what they hand out.

I have spent years and years on medications and today I find that I my Crohn's is doing much better on a trial drug called Vedolizumab, together with Methotrexate, Metrocloprimide, and Omeprazole along with Calcium, Vitamin B and D. I endure taking Vedolizumab by IV every four weeks at Mount Sinai Hospital in Toronto, Ontario, Canada. I inject Methotrexate every week and take all the rest on a daily basis. Some up to four times a day. Medication is my way of life but it is what gives me the ability to live my life as best as I can to the fullest.

Drugs that are being tested are part of life and have been for the last fifteen years. I have taken many of them to include Remicade and Orencia (not used any more for Crohn's). For us Crohnies we change medications as required and not all us are the same medications. Some work and some don't. As for me I have to be careful seeing how I have had a brain bleed that required surgery to repair five years ago.

Today I am alive and feel that I have so much to live for cause I OWN CROHN'S and it doesn't own me. My time on this earth means a great deal to me to be able to see my children have their own children. To see my family gain what they can in live.